Sometimes............I get side-tracked

Reality hits me between the eyes last night.  I lost track of what I was writing this blog for and I noticed I have not been writing very often, just sporadically.  I'm not going to beat myself up for that, I've been busy with huge changes in my personal life.  Moved from the mainland to Hawaii in April, then 6 weeks later had to move to a more wheel-chair accessible apartment to meet my hubby's needs.

The original idea behind this blog was to honor my son,  Jason (or Boddhi as he prefers to be called).  He has an inoperable brain tumor.  He has his ups and downs and is living on what I call bonus time as in his original diagnosis, the doctors gave him 6-18 months to live.  He passed the 18 months milestone on April 2.  So, in a way, these are bonus months.  He has applied to Harvard Medical to participate in a clinical study involving a new cancer treatment. We are waiting to hear from them. 

Last night Jason called me,  we talked about 2 hours on the phone.  His symptoms are getting more severe in the past few weeks. He is almost constantly nauseated and either vomiting or feeling as though he needs to vomit.  Yet, in spite of that, he is doing some incredible art work, is doing more tattoo work than ever and is making movies!  He has been traveling extensively in the past few months.  Many friends and many of his tattoo clients have been sending him tickets to visit them or get some custom tattoo work.  I'm so happy that he has been able to go on these trips.  Last night, he told me that he doesn't know if he can fly any more as the altitude change in a flight is causing incredible pressure and his headaches are so severe during a flight that he is doing all he can not to scream.  It breaks my heart.   Anyway,  just need to get this out. 

Be sure to hug your loved ones and let them know you love them.  Tomorrow just may be too late.

Much Aloha,

Kat

darleen1956
Aloha Kat. Aloha Boddhi.So very sorry to hear this.

Hoping he gets into the studies and trials very soon.

Hugs,many Prayers.
Jul-19-08 23:45:40 PDT Report this comment
mixednut555
Thanks Twit, thanks Darleen. My heart is so heavy tonight, has been all day. I appreciate your support.

Hugs to you two,
Kat
Jul-19-08 23:48:38 PDT Report this comment
darleen1956
I imagine it is.:( :( The pain is so awful hard.

There is no rhyme nor reason to illness,and who it strikes,and we wonder why,such a vital young man,should have to bear this.It baffles me,and when our young are taken from us too soon.

Hoping God pours out His Blessings a million fold on Jason.
Jul-19-08 23:53:18 PDT Report this comment
mixednut555
Many thanks, Darleen
Jul-20-08 00:00:29 PDT Report this comment
steve-o-meter
hey Kat....it's got to be hard to be away from Boddhi

Loving you girl...wondered where you went..forgot about hawaii
Jul-20-08 00:21:34 PDT Report this comment
mixednut555
Aww, thanks Kay! I appreciate all the loving, truly.

Kat
Jul-20-08 00:34:33 PDT Report this comment
jcarolek
Kat,

This time with your son is amazing.. truly a gift. I remember when you first found out about his condition. I remember how worried you were when he left to spend his "final weeks, days" up with friends... moving away from where you could see him daily and care for him, as only a mother can. His strength and unwillingness to simply give up is a testament to the character you helped build in your son. And his decision to grab life and LIVE while still in this worldly life that is all WE can really comprehend as "living" has, I'm certain, added time to his life, as well as adding memories for others. Is he an angel, touching others when their lives need it? Is there a reason he was afflicted with this disease? I don't know the answer to these questions. But I believe with every fiber of my being, that he is carrying on important tasks... and he was not afraid to do so.... when many, many others would have simply taken the help Mom offered and spent their final days, ebbing away from this world.

I know you are already proud of this "boy." Be also proud of yourself for being willing to let him live, according to his own agenda.

Take care kat...this is a nice post and an important one.
Jul-20-08 01:56:02 PDT Report this comment
mixednut555
Thank you Judy, I needed to hear what you wrote to me. I appreciate your wisdom AND you taking the time to write to me. I'm not one to cry, but my eyes are swimming in tears, thank you for your kindness.

Kat
Jul-20-08 03:39:59 PDT Report this comment
kateharley
Hi Kat.

Celllman and I were just talking about you the other day.
We both agreed that if we wanted to 'head for Hawaii',
we could just stay with you! (BH looked at us like we were
crazy!)

Don't worry, not headed your way...BUT, if we did, we'd be
sure and look you up.

I hope you're letting Boddhi know that he has lots of peeps
cheering for him. I've had my fingers crossed ever since you
let us know about the clinical studies. I truly believe that
his stay here on good ol' earth can be extended, with the
right help. I'll be praying, and I don't do that for just
ANYBODY! (What could it possibly hurt, huh?)

Thinking of you, friend.
Kate.
Jul-21-08 06:47:27 PDT Report this comment
jcarolek
Saw your comment on S_J's post. Just wanted to let you know you are in my thoughts... you and Jason.
Jul-31-08 03:21:56 PDT Report this comment

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