Reality hits me between the eyes last night. I lost track of what I was writing this blog for and I noticed I have not been writing very often, just sporadically. I'm not going to beat myself up for that, I've been busy with huge changes in my personal life. Moved from the mainland to Hawaii in April, then 6 weeks later had to move to a more wheel-chair accessible apartment to meet my hubby's needs.
The original idea behind this blog was to honor my son, Jason (or Boddhi as he prefers to be called). He has an inoperable brain tumor. He has his ups and downs and is living on what I call bonus time as in his original diagnosis, the doctors gave him 6-18 months to live. He passed the 18 months milestone on April 2. So, in a way, these are bonus months. He has applied to Harvard Medical to participate in a clinical study involving a new cancer treatment. We are waiting to hear from them.
Last night Jason called me, we talked about 2 hours on the phone. His symptoms are getting more severe in the past few weeks. He is almost constantly nauseated and either vomiting or feeling as though he needs to vomit. Yet, in spite of that, he is doing some incredible art work, is doing more tattoo work than ever and is making movies! He has been traveling extensively in the past few months. Many friends and many of his tattoo clients have been sending him tickets to visit them or get some custom tattoo work. I'm so happy that he has been able to go on these trips. Last night, he told me that he doesn't know if he can fly any more as the altitude change in a flight is causing incredible pressure and his headaches are so severe during a flight that he is doing all he can not to scream. It breaks my heart. Anyway, just need to get this out.
Be sure to hug your loved ones and let them know you love them. Tomorrow just may be too late.
Much Aloha,
Kat