Gotta shout this to the world! My dearest beloved baby girl will turn 1 this August! What is the big deal? It is her first step towards defeating the odds. Why? Whe has Spinal Muscular Atrophy Type 1, and so she battles for her life every second. Against the doctor's predictions, she lives. She uses a ventilator 18 hours a day, and then she smiles breathing on her own for a while... so we can catch a glimpse of her lovely beauty.

Every sacrifice has been worth it.